This time last year we were still in hospital. Forty eight hours after he was born, Nino had an emergency balloon septostomy in the paediatric intensive care unit of the Royal Brompton Hospital, a precursor to the open heart surgery he would undergo nine weeks later. I can remember sitting waiting for him to wake from the anaesthetic as if it was yesterday: the flutter and fall of his tiny chest, the sleepy beeps of a dozen life support machines, the artificial light illuminating our twenty four hour world and the sweet nurse suggesting, gently, for the eleventh time that I try to get some sleep myself.   Continue reading →